Tổng quan nghiên cứu về kiệt sức làm cha mẹ có con rối loạn phổ tự kỉ và định hướng nghiên cứu trong bối cảnh Việt Nam
Tóm tắt
Raising a child with autism spectrum disorder (ASD) places parents under prolonged pressure, increasing the risk of parental burnout. This article aims to review, systematize, and evaluate scientific evidence regarding the current state, measurement tools, and factors associated with parental burnout among parents of children with ASD, thereby identifying research gaps and proposing specific directions for the Vietnamese context. The review results indicate that parental burnout is a multidimensional psychological syndrome resulting from a prolonged imbalance between risk factors and resources (based on the BR² model). Challenging child behaviors such as sleep disturbances, hyperactivity, and aggression and perceived social support (particularly from a spouse) exert the strongest and most consistent influence; meanwhile, the impacts of demographic factors, courtesy stigma, and gender role pressures differ markedly between Eastern and Western contexts. Notably, the study identifies a methodological gap: in Vietnam, existing research offers only indirect evidence based on measures of stress or caregiving burden and lacks longitudinal or direct studies utilizing the Parental Burnout Assessment (PBA) scale. The study establishes a solid theoretical foundation to assist clinicians and researchers in Vietnam in selecting and culturally adapting the PBA tool, while also guiding the development of psychological intervention programs and family support policies tailored to East Asian cultural characteristics.
Tài liệu tham khảo
Alshaigi, K., Albraheem, R., Alsaleem, K., Zakaria, M., Jobeir, A., & Aldhalaan, H. (2020). Stigmatization among parents of autism spectrum disorder children in Riyadh, Saudi Arabia. International Journal of Pediatrics & Adolescent Medicine, 7(3), 140-146. https://doi.org/10.1016/j.ijpam.2019.06.003
Bebko, J. M., Konstantareas, M. M., & Springer, J. (1987). Parent and professional evaluations of family stress associated with characteristics of autism. Journal of Autism and Developmental Disorders, 17(4), 565-576. https://doi.org/10.1007/bf01486971
Brianda, M. E., Roskam, I., Gross, J. J., Franssen, A., Kapala, F., Gérard, F., & Mikolajczak, M. (2020). Treating Parental Burnout: Impact of Two Treatment Modalities on Burnout Symptoms, Emotions, Hair Cortisol, and Parental Neglect and Violence. Psychotherapy and Psychosomatics, 89(5), 330-332. https://doi.org/10.1159/000506354
Carver, C. S. (1997). You want to measure coping but your protocol’s too long: Consider the Brief COPE. International Journal of Behavioral Medicine, 4(1), 92-100.
Chen, M. L., Liu, X. H., & Guo, J. (2022). Relationship between social support and parental burnout in COVID-19 among Chinese young parents. Journal of Peking University (Health Sciences), 54(3), 520-525. https://doi.org/10.19723/j.issn.1671-167X.2022.03.018
Cheng, H., Wang, W., Wang, S., Li, Y., Liu, X., & Li, Y. (2020). Validation of a Chinese version of the Parental Burnout Assessment. Frontiers in Psychology, 11, 321. https://doi.org/10.3389/fpsyg.2020.00321
Costa, A. P., Steffgen, G., & Ferring, D. (2017). Contributors to well-being and stress in parents of children with autism spectrum disorder. Research in Autism Spectrum Disorders, 37, 61-72. https://doi.org/10.1016/j.rasd.2017.01.007
Davis, N. O., & Carter, A. S. (2008). Parenting Stress in Mothers and Fathers of Toddlers with Autism Spectrum Disorders: Associations with Child Characteristics. Journal of Autism and Developmental Disorders, 38(7), 1278-1291. https://doi.org/10.1007/s10803-007-0512-z
DeGangi, G. A., Breinbauer, C., Roosevelt, J. D., Porges, S., & Greenspan, S. (2000). Prediction of childhood problems at three years in children experiencing disorders of regulation during infancy. Infant Mental Health Journal, 21(3), 156-175. https://doi.org/10.1002/1097-0355(200007)21:3%3C156::AID-IMHJ2%3E3.0.CO;2-D
Dominick, K. C., Davis, N. O., Lainhart, J., Tager-Flusberg, H., & Folstein, S. (2007). Atypical behaviors in children with autism and children with a history of language impairment. Research in Developmental Disabilities, 28(2), 145-162. https://doi.org/10.1016/j.ridd.2006.02.003
Drogomyretska, K., Fox, R., & Colbert, D. (2020). Brief Report: Stress and Perceived Social Support in Parents of Children with ASD. Journal of Autism and Developmental Disorders, 50(11), 4176-4182. https://doi.org/10.1007/s10803-020-04455-x
Finch, J. F., Baranik, L. E., Liu, Y., & West, S. G. (2012). Physical health, positive and negative affect, and personality: A longitudinal analysis. Journal of Research in Personality, 46(5), 537-545. https://doi.org/10.1016/j.jrp.2012.05.013
Gannagé, M., Besson, E., Harfouche, J., Roskam, I., & Mikolajczak, M. (2020). Parental burnout in Lebanon: Validation psychometric properties of the Lebanese Arabic version of the Parental Burnout Assessment. New Directions for Child and Adolescent Development, 2020(174), 51-65. https://doi.org/10.1002/cad.20383
Giallo, R., Wood, C. E., Jellett, R., & Porter, R. (2013). Fatigue, wellbeing and parental self-efficacy in mothers of children with an autism spectrum disorder. Autism: The International Journal of Research and Practice, 17(4), 465-480. https://doi.org/10.1177/1362361311416830
Halstead, E. J., Griffith, G. M., & Hastings, R. P. (2017). Social support, coping, and positive perceptions as potential protective factors for the well-being of mothers of children with intellectual and developmental disabilities. International Journal of Developmental Disabilities, 64(4-5), 288-296. https://doi.org/10.1080/20473869.2017.1329192
Hayes, S. A., & Watson, S. L. (2013). The impact of parenting stress: a meta-analysis of studies comparing the experience of parenting stress in parents of children with and without autism spectrum disorder. Journal of Autism and Developmental Disorders, 43(3), 629-642. https://doi.org/10.1007/s10803-012-1604-y
Jensen, E. W., James, S. A., Boyce, W. T., & Hartnett, S. A. (1983). The family routines inventory: Development and validation. Social Science & Medicine, 17(4), 201-211.
Ji, B., Jiang, X., & Luo, Y. (2022). Autistic children’s age difference in affiliate stigma and resilience of their parents in China: A cross-sectional study. Archives of Psychiatric Nursing, 39, 7-12. https://doi.org/10.1016/j.apnu.2022.01.006
Kinnear, S. H., Link, B. G., Ballan, M. S., & Fischbach, R. L. (2016). Understanding the Experience of Stigma for Parents of Children with Autism Spectrum Disorder and the Role Stigma Plays in Families’ Lives. Journal of Autism and Developmental Disorders, 46(3), 942-953. https://doi.org/10.1007/s10803-015-2637-9
Kütük, M. Ö., Tufan, A. E., Kılıçaslan, F., Güler, G., Çelik, F., Altıntaş, E., Gökçen, C., Karadağ, M., Yektaş, Ç., Mutluer, T., Kandemir, H., Büber, A., Topal, Z., Acikbas, U., Giray, A., & Kütük, Ö. (2021). High Depression Symptoms and Burnout Levels Among Parents of Children with Autism Spectrum Disorders: A Multi-Center, Cross-Sectional, Case-Control Study. Journal of Autism and Developmental Disorders, 51(11), 4086-4099. https://doi.org/10.1007/s10803-021-04874-4
Lin, Y., Wang, Y., Lin, C., Ni, Q., Jia, R., Chang, Y., & Qi, Y. P. (2023). The mediating role of perceived social support: Alexithymia and parental burnout in parents of children with autism spectrum disorder. Frontiers in Psychology, 14, 1139618. https://doi.org/10.3389/fpsyg.2023.1139618
Liu, S., Wu, D., Li, J., & Yin, H. (2025). Latent profile analysis of parental burnout among parents of children with and without autism spectrum disorder. Frontiers in Psychology, 16, 1581321. https://doi.org/10.3389/fpsyg.2025.1581321
Maslach, C., & Jackson, S. E. (1981). The measurement of experienced burnout. Journal of Organizational Behavior, 2(2), 99-113. https://doi.org/10.1002/job.4030020205
Mikolajczak, M., & Roskam, I. (2018). A Theoretical and Clinical Framework for Parental Burnout: The Balance Between Risks and Resources (BR2). Frontiers in Psychology, 9, 886. https://doi.org/10.3389/fpsyg.2018.00886
Mikolajczak, M., Gross, J. J., & Roskam, I. (2019). Parental burnout: What is it, and why does it matter?. Clinical Psychological Science, 7(6), 1319-1329.
Neff, K. D. (2003). The development and validation of a scale to measure self-compassion. Self and Identity, 2(3), 223-250. https://doi.org/10.1080/15298860309027
Nguyễn Thị Mai Lan (2012). Tâm trạng của cha mẹ có con bị tự kỉ. Tạp chí Tâm lí học, 5, 51-61.
Phạm Thị Thơm, Đặng Văn Thức, Lê Xuân Ngọc, Phạm Văn Tân, Phạm Trung Kiên (2023). Một số yếu tố liên quan tới gánh nặng chăm sóc của các gia đình có con rối loạn tự kỉ điều trị tại Bệnh viện Nhi Trung ương. Tạp chí Y học Việt Nam, 520(2). https://doi.org/10.51298/vmj.v520i2.4154
Phan Văn Hiệp (2026). Thực trạng khó khăn tâm lí của cha mẹ có con rối loạn phổ tự kỉ tại thành phố Biên Hòa, tỉnh Đồng Nai. Tạp chí điện tử Giáo chức Việt Nam. https://tapchigiaochuc.com.vn/thuc-trang-kho-khan-tam-ly-cua-cha-me-co-con-roi-loan-pho-tu-ky-tai-thanh-pho-bien-hoa--tinh-dong-nai-2862.htm
Prinzie, P., Stams, G. J. J. M., Deković, M., Reijntjes, A. H. A., & Belsky, J. (2009). The relations between parents’ Big Five personality factors and parenting: A meta-analytic review. Journal of Personality and Social Psychology, 97(2), 351-362. https://doi.org/10.1037/a0015823
Qi, C. Y., & Wang, Y. (2021). Why is rehabilitation assistance policy for children with disabilities deviated in Supply-Demand? A case study in mainland China. Frontiers in Public Health, 9, 666333. https://doi.org/10.3389/fpubh.2021.666333
Roskam, I., Aguiar, J., Akgun, E., Arikan, G., Artavia, M., Avalosse, H., … & Mikolajczak, M. (2021). Parental burnout around the globe: A 42-country study. Affective Science, 2(1), 58-79. https://doi.org/10.1007/s42761-020-00028-4
Roskam, I., Brianda, M. E., & Mikolajczak, M. (2018). A Step Forward in the Conceptualization and Measurement of Parental Burnout: The Parental Burnout Assessment (PBA). Frontiers in Psychology, 9, 758. https://doi.org/10.3389/fpsyg.2018.00758
Sekułowicz, M., Kwiatkowski, P., Manor-Binyamini, I., Boroń-Krupińska, K., & Cieślik, B. (2022). The Effect of Personality, Disability, and Family Functioning on Burnout among Mothers of Children with Autism: A Path Analysis. International Journal of Environmental Research and Public Health, 19(3), 1187. https://doi.org/10.3390/ijerph19031187
Siedlecki, K. L., Salthouse, T. A., Oishi, S., & Jeswani, S. (2013). The relationship between Social Support and Subjective Well-Being across age. Social Indicators Research, 117(2), 561-576. https://doi.org/10.1007/s11205-013-0361-4
Sodi, T., Kpassagou, L. B., Hatta, O., Ndayizigiye, A., Ndayipfukamiye, J., Tenkué, J. N., Bahati, C., & Sezibera, V. (2020). Parenting and parental burnout in Africa. New Directions for Child and Adolescent Development, 2020(174), 101-117. https://doi.org/10.1002/cad.20386
Trew, S., & Russell, D. H. (2026). Family adaptation in families with autistic members: A scoping review and thematic synthesis of relational systems, context, and development. Child Psychiatry & Human Development. https://doi.org/10.1007/s10578-026-02023-5
Vigouroux, S. L., Scola, C., Raes, M., Mikolajczak, M., & Roskam, I. (2017). The big five personality traits and parental burnout: Protective and risk factors. Personality and Individual Differences, 119, 216-219. https://doi.org/10.1016/j.paid.2017.07.023
Wang, W., Liu, X., Wang, S., Li, Y., & Li, Y. (2023). Personality Traits and Parental burnout among Fathers: A moderated mediation model. Journal of Child and Family Studies, 32(6), 1655-1665. https://doi.org/10.1007/s10826-022-02507-7
Zimet, G. D., Dahlem, N. W., Zimet, S. G., & Farley, G. K. (1988). The multidimensional scale of perceived social support. Journal of Personality Assessment, 52(1), 30-41. https://doi.org/10.1207/s15327752jpa5201_2
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